Haemophagocytic Lymphohistiocytosis (HLH) is a very rare disease; an estimated 1.2 per million children are affected each year. HLH covers a number of conditions, all differing in cause, treatment and outcome. It can be inherited (primary, also called FHL) or acquired (secondary).

HLH can be difficult to diagnose. Haematologists, immunologists, rheumatologists, hepatologists, oncologists, neurologists, paediatricians and others may all find themselves confronted with undiagnosed HLH.

It can also be a difficult, isolating disease for patients and families to manage, although the outcomes for children with HLH have improved significantly over the past 20 years.

To increase awareness of HLH and support for families, we’re delighted to be hosting two parallel conferences on HLH this September: one for medical professionals and one for families of children with HLH.

These conferences are supported by funds raised by the Mole family and friends in memory of Tom. #TM8


Understanding HLH for Medical Professionals

Join us for a day-long conference exploring paediatric Hemophagocytic lymphohistiocytosis (HLH).

 Date: 

21 September 2019, 8.30am - 5pm

 Venue:

Education Resource Centre,

Lower Ground Floor

Birmingham Women’s Hospital,

Edgbaston,

Birmingham,

B15 2TG

 (please note, this conference is NOT at Birmingham Children’s Hospital)

 Conference Fee:               

£50, including refreshments and lunch

 Audience:                            

This conference is relevant to all medical professionals involved in the diagnosis and treatment of HLH, from consultants to trainees. RCPCH CPD approval applied for.

 Learning Aims:

This one-day conference will allow delegates to learn in detail about a number of aspects of HLH, including:

  • How to diagnose HLH and/or refer patients for HLH diagnosis
  • How to differentiate HLH and its disease variants from other similar diseases
  • The pathogenesis of HLH and how to treat it, including via transplant
  • The Genetics of HLH, including laboratory investigations
  • HLH and immunology

 Medical Case Studies and Patient Journeys will illustrate the disease in context. During the day, there will be chances to network with other professionals and to speak to families and children with HLH attending our parallel Families’ Conference.

 A full conference programme and final speakers list will be uploaded in August.

 Confirmed Speakers Include; 

  • Anupama Rao, Paediatric Haematologist, Great Ormond Street Hospital, London
  • Austen Worth, Consultant Paediatric Immunologist, Great Ormond Street Hospital, London
  • Beki James, Consultant Paediatric Haematologist, Leeds General Infirmary
  • Frank Mussai , Consultant Paediatric Oncology, Birmingham Children’s Hospital
  • Eslam al-Abadi, Consultant Paediatric Rheumatologist, Birmingham Children’s Hospital
  • Evangeline Wassmer, Paediatric Neurologist, Birmingham Children’s Hospital
  • Hannah Titheradge, Consultant in Clinical Genetics, Birmingham Women’s Hospital
  • Jayashree Motwani, Consultant Paediatric Haematologist, Birmingham Children’s Hospital
  • Nitya Gulati, Texas Children's Cancer Centa, USA

 Interested in presenting a Case Study?

We will select five from entries received. Please email Dr Jayashree Motwani, Conference Organiser, with a proposal (max 500 words) by 1 September.

 How to Book

All tickets should be booked online using the 'Medical Professionals Booking' link below:


Families and HLH

Join us for a day-long conference exploring Hemophagocytic lymphohistiocytosis (HLH) in children.

 Date:                                     

21 September 2019, 9am - 1.30pm

 Venue:                                 

Education Resource Centre,

Lower Ground Floor                               

Birmingham Women’s Hospital,

Edgbaston,

Birmingham

B15 2TG

(please note, this conference is NOT at Birmingham Children’s Hospital)

 Conference Fee:               

Entry is free of charge for paediatric HLH patients and their families, but places must be booked in advance. Entry to the National Sea Life Centre is included, but places must be requested in advance.

 Join us for a half-day conference exploring Hemophagocytic lymphohistiocytosis (HLH) and its impact on children and families.

 This half-day conference has been specifically designed to bring together children and families dealing with HLH, both inherited (FHL) and acquired.

 You will have a chance to learn more about HLH and the treatment options available, as well as to question to our panel of physicians. The event also includes a chance to hear and share patient journeys, as well as

to give and receive support from other families dealing with similar issues.

 You will be able to meet and chat to delegates attending our parallel conference for medical professionals over lunch.

 During the afternoon, you are invited to take part in an optional trip to the National Sea Life Centre - a fabulous accessible family experience located in the heart of Birmingham.

 Confirmed Speakers Include;

  • Mark Velangi, Consultant Paediatric Haematologist, Birmingham Children's Hospital
  • Nytee Cole, Consultant Paediatric Haematologist, Birmingham Children's Hospital

 Are you interested in presenting your ‘HLH Journey’ at our conference for medical professionals?

We will select three patient journeys for presentation from entries received. Please email Dr Jayashree Motwani, Conference Organiser, with a summary of your story (max 500 words) by 1 September.

 How to Book

All tickets should be booked online using the 'Families and HLH' booking link below.

Book a place

Ticket Quantity Price

Medical Professionals Booking

Decrease Increase £50.00

Families and HLH

Decrease Increase £0.00